Thursday, January 28, 2016

What Fibromyalgia is to me

People with fibro have all different sorts of symptoms. I wanted to make a list of what my particular pain feels like. Feel free to say in the commentsts what your fibro is to you.


  • The cloth on my pants rubbing against the top of my foot, causing it to "burn" ot have an electric hum to it.
    My finger "look" fine. But they aren't.
  • My hands feeling like they are fat and bloated to the point where i cant bend them, but nothing looks wrong with them. They just feel huge and uncooperative. But they look perfectly normal.
  • My head and hands especially, but my whole body feels tiny and fragile, like it could so easily snap and break.
  • Feeling as if my whole body is bruised. But it isn't
  • Walking on fire, or needles, or numbness in toes. Also, the feeling of having blisters on my feet where there are none. (This was my first symptom)
  • Inability to complete a sentence, thought, or action.
  • Lack of focus and motivation (probably a lack of motivation due to shit being done wrong when i do it, or being incomplete if i do).
  • Inability to hold my anger. I will snap at a moments notice, and it is because my patience has been exhausted with trying to be publicly nice while in pain at work or social events that I can't postpone.
  • Severe fatigue. Like "can't keep eyes open while driving" fatigue.  I mean "it's one more exit, hold it together. Body doesn't care, you better stop now," fatigue.
  • Jumpy legs wont let me sleep without drugs.
  • Insomnia either to do with jumpy legs or for a different or non reason.
  • Self respect plummeting as you realize you cant do anything for yourself.
  • Tingling or numbness in extremities, and on one side vs the other, or top half vs bottom, or any combo at any given time.
  • Everything is more sensitive. If you tap me on the arm or shoulder i will scream at you while cowering from that touch.
  • Phantom nerve pain. There is nothing there, but it feels like the same pain as the pants (see bullet one). Seriously, it happens in my hands and there is nothing there. No fabric. Nothing. 
  • Phantom stab.  Just like above, except my nerves think they are being stabbed, instead of electrocuted.
  • I cant get warm.  I am fecking freezing.  
  • I dont want to move. Seriously. If i can find a position where i dont feel like i am being electric shocked or stabbed, or anything, I wont want to move until it is absolutely necessary for me to do so.  This causes me to be late for everything, when i am always punctual any other time.   I dont want to move. Dont make me. Please, tell me i dont have to do whatever it is that is going to cause me to move.  I dont want to adult. Oh i WILL, but no one is going to be happy about it.
  • Extreme sensitivity to hot or cold. Unless it is luke-warm, it's either fire or ice.
  • Feeling claustophobic.  Maybe this goes ba k to painful touch.
I may think of more later. But this is everything I've had this week.


Wednesday, December 9, 2015

The "End of Year" list for 2015

Here we are again.  Another year come and gone.  Another list to compile of stuff I did, stuff I mock when I look back (the list of things I want to do), and the general feeling of the year as it was.

Let me just say: What a bloody crazy year it was!  I wasn't expecting most of the stuff that happened this year.  It's been wild, to say the least

After losing my job in January, the months off in between were lovely.  But stressful at times.  I had a blast hanging out with Valerie during that time.  Being "mom-extraordinaire" was a lot of fun work.  

Then, while at the beach in June, I got the phone call I had been hoping for during those past few months.  The phone call that I was being offered the job I hoped for.  So, I started June 29th, and it's been wonderful working with such a great group of people!

That being said, I read next to nothing this year.  I've read all of 2 books.  One of which was a dime-novel with the spine less than a centimeter!  So, I've been pretty bad when it comes to my reading.  But, in my defense, the second half of the year was just as crazy as the first - if not more.


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First, let's mention the Low-lights of the year (because I want to end on a positive note):

  • My uncle died in April
  • Lost my job in January
  • Marriage dissolved in August
  • Daughter is having a rough time of life right now.


Highlights this year (my positives):

  • Got to hang out with Valerie in Carpool for the last half of 8th grade
  • Found a new, better job in June while I happened to be at the beach with family.
  • Saw Ingrid Michaelson live in June
  • Later that month, I went to Rocky Horror's Live show
  • I know exactly who I can - and who I can't - count on when the going gets tough.
  • Got to see the Biltmore Estate for the first time in September.  It was beautiful and extraordinary and everything they say it is.
  • At the end of this month, I'm hoping to see the new Star Wars